Today Lori and I are celebrating our 27th wedding anniversary. We hoped to go to Hawaii for our 25th, but then the pandemic changed our travel plans. A couple of years later we are still waiting to take that trip. Maybe it will become a 30th anniversary trip, but I hope it won’t be that long before we go.
We first me at the end of 1992 when I was looking for a co-leader for a Bible study I led off-campus with InterVarsity Christian Fellowship at UC Davis. As I look back I’m struck by how we bonded around our health journeys and how we’ve become advocates for each other and others in the community.
I wrote the excerpt below for an Everyday Health blog about five years ago. Many of my older blogs (some dating back to 2007) have been removed in an effort to boost traffic to their website. It pained me to see hundreds of my columns removed, but I thankfully do have drafts or copies of most of them.
This particular blog focused on ways Lori and I support each other with our health challenges. It’s still true today–we are each other’s care partners and greatest champions as we daily live with chronic illness and disability.
A lot can happen in a couple of years. I’ve changed jobs, become an empty nester, and adjusted to (more forced into) pandemic life. But all through the past twenty-four months one thing has remained the same: Skyrizi.
I started taking Skyrizi to treat my psoriasis on May 31, 2019. With two years under my belt, I wanted to update how I’m doing and my experience with Skyrizi through a Q/A format.
Skyrizi is normally dosed at every twelve weeks with two syringes making up one dose. When I began I took a dose at week 0 and then at week 4. These two doses are considered a starter, or loading, dose. My next dose, a maintenance dose, was at week 16 (or 12 weeks after the week 4 loading dose).
April 7, 2021. In line at the Woodland Community and Senior Center to receive the first Moderna vaccine dose.
The moment the needle plunged into my left arm I began to feel anxious and lightheaded. My doctors encouraged me to get the first COVID-19 vaccine available to me. That day came on April 7th.
I felt reluctant to get vaccinated for fear that my skin conditions psoriasis and eczema might flare. But getting COVID-19 sounded much worse, so I relented. Once the needle came out of my arm I knew I could not go back.
I wrote on my Everyday Health blog that I don’t like needles. I can tolerate them now, but I generally feel a bit dizzy after a needle prick. This one felt much worse than others, however. It must have shown on my face. A nurse roaming the area where those recently jabbed waited fifteen minutes stopped to check on me. “I feel a bit dizzy and woozy,” I told her. She offered a Gatorade, which I reluctantly accepted.
On March 19, 2020 California Governor Newsom announced a statewide stay-at-home order. Here is a screenshot from my phone:
Recently both the county and state extended the lockdown to May 1st. With the president and governors talking about opening up the economy again, there is hope this lockdown will end soon.
Until then, Lori and I plan to post a weekly journal updated every day or two to mark thoughts, reflections, and news related to life sheltering-at-home.
This is week 5 of the lockdown.
Sunday, April 26, 2020
Resting and Sabbath
My sabbatical from church ends in about a month. Something I desperately looked forward to was a break from the grind of church ministry. After fifteen years of pastoral ministry without a longer break, together with the challenges and crises the family faced, I desperately wanted some time to rest.
Before I started my sabbatical an acquaintance asked me about my plans. I briefly mentioned travel, writing, and sleeping in whenever I wanted to. He told me those activities would no doubt be life giving. He also stressed the importance of mentally gaining distance and perspective from my daily work.
As I hit third base and turn toward home (excuse the baseball analogy), I can see the past three months have not turned out anything like I expected. I did travel a bit in February, but had to cancel the rest of my trips. I’ve blogged more, but haven’t come around to working on my book or study guide.
As I hit third base and turn toward home (excuse the baseball analogy), I can see the past three months have not turned out anything like I expected.
Sleeping in has been restorative physically, but it has been the distance from work that has renewed me in ways I didn’t anticipate. I have time to think, meditate, and process life. Lori and I can spend (relatively) stress-free afternoons together.
The mental, emotional, and spiritual renewal from this break is exactly what I needed. Although the coronavirus crisis ruined my plans (and of course it is much bigger than me and what I wanted to do), I’m glad the time turned out the way it has.
Finally, on this Sunday, I’m praying for those on the front lines of the Covid-19 response and those personally impacted by the illness. May God be merciful and bring healing to this devastation.
Thursday, April 23, 2020
Coronavirus and Psoriasis (Howard)
UPDATE: I mentioned on Monday that I messaged my dermatologist, Dr. Carroll, about taking Skyrizi before Tuesday. In her reply she surmised why my psoriasis flared recently: skin damage from phototherapy burn and possibly needing Skyrizi more frequently.
Since she said I could inject the medication anytime, I decided to go ahead last night. One dose comes in two syringes, so I injected one on the left and one on the right of my belly button (at least two inches out).
I experienced the normal lightheadedness and fatigue just after the injection. Still some after effects today, but definitely nothing to horrible.
With the lockdown I’ve had more time to write for my column on Everyday Health, The Itch to Beat Psoriasis. In particular, I’ve published three articles about psoriasis and the coronavirus pandemic.
I’ll finish today’s entry with links to each of them.
I have been longing for Howard and I to cook together for many years. His work as a minister is very demanding—both early morning and evening meetings in a given week that would require him to be away from home.
When would come home from work, I would want him to either take some personal time or just spend time with the children. I would figure out the dinner menu. Some days were full for me as a minister’s wife so I would skip cooking dinner completely—get some takeout from a restaurant or fast food.
It was “kid food” anyways, I reasoned, so the kids and I would all feast on fried chicken, hamburgers and fries, chicken nuggets, etc. Especially if Howard attended a small group church meeting, there were often potlucks where he could eat dinner and sample church members’ home cooking.
It was a win-win. Except I felt like something was missing. Long gone were the days when I was at my grandmother’s house helping her fix a homemade meal and then talk with her over washing the dishes afterwards—she would wash, I would dry.