psoriasis

My Psoriasis Journey Video

It’s been a while since I’ve written here. Our lives took a challenging turn at the beginning of the year. My father-in-law, Donald Croup, fell and broke his elbow in late January. That set off a series of health downturns including a heart attack, a urinary tract infection, and the loss of mobility. Complications around dementia took his life on May 3rd. His memorial site on Forever Missed can be found here.

As Dad’s primary caregivers, Lori, an only child, and I took numerous flights down to Southern California from Sacramento airport. The stress of traveling that much began to wear on me. When approached by PatientPortal to be the subject of a psoriasis patient story I felt conflicted. I looked forward to any opportunity to help others who are living with psoriasis, including through various media. But the time commitment felt overwhelming given everything going on.

The Interview and Shoot

The producers told me they would set up a Zoom call to discuss if I would be a good fit for the project. I figured I could decide whether or not to do the project after asking a few questions about it. At first I thought it was a short check-in call. Then I realized about ten minutes in that this would take an hour or more. By the end of the call they enthusiastically asked me if I would participate. Caught up in the moment I responded that I would.

A few weeks later Drew, the director/producer, came to the house with a film crew. They transformed the living room into a studio where they interviewed me and took footage of the living room campsite and journals. We also went to the Homestead Trail near Lake Berryessa, about a 30 minute drive, to film the outdoor shots. The intermittent rain made climbing the muddy hill a slippery adventure.

Here is the final product posted on YouTube:

The Power of Journaling and Faith

I appreciate how they focused on the important role that journaling and faith had on my ability to not only cope, but become and advocate, with psoriasis. Many of my journals as a young adult became written prayers. They display an honesty and transparency that painfully reveal how much I struggled with psoriasis before better treatments became available. They also document how I persevered to where I could keep living my life to finish college, have a family, and start pastoring churches after finishing graduate school.

My favorite story is how my college faith community became crucial in my emotional and spiritual healing. I now work with InterVarsity Christian Fellowship partly because of the impact my chapter at University of California, Davis had on my journey during those college years. Even though treatments have come a long, long way since those days in the early 1990s, I still lean heavily on my faith to cope with the psoriasis and health ups and downs.

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2 thoughts on “My Psoriasis Journey Video

  1. Susan Johnston says:

    Have you found anything that works consistently? I am currently taking Skyrzi, it’s supposed to be the latest and greatest. I continue to have flair ups and even in new places. Watched your video, it was very well done. Mine didn’t go from mild to horrendous until my Dad was diagnosed with COPD. The stress of dealing with that pushed me over the edge.

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    • Hi! I’m also taking Skyrizi–over four years now. It’s overall been the best treatment I’ve had for psoriasis, but it doesn’t clear me. I also have flares from time to time even with it. Sorry to hear about your dad and how your psoriasis got much worse after his diagnosis. Stress has been a trigger for me too. Life comes at us and we do the best we can to cope, including with how our skin responds.

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