Last year I very much looked forward to attending the National Psoriasis Foundation's Capitol Hill Day in the nation's capital. Alas, due to inclement weather and subsequent flight cancellations, I didn't make it. This year I'm hoping the storms hold off long enough for my flight to land at Ronald Reagan National Airport on Sunday evening. If they do I'll not only check off another item off of my psoriasis bucket list, but also join in a cause I’ve become increasingly passionate about.
March 5th finally arrived--injection day. The time came for the fifth dose of Tremfya (guselkumab) twenty-eight weeks after starting this treatment journey with it in August. As I waited for the medication to warm up for a few minutes my thoughts began to wander. Would I take Tremfya if my insurance didn't pay for the approximately ten thousand dollars per injection? Is there any chance for even greater improvement as I go into the second half of a year taking it? Will any long-term side effects eventually pop up if I take Tremfya over a long period?
I looked forward to my first dermatology appointment at 1:30 p.m. I drove into town around 12:30 to give myself plenty of time. Then it dawned on me. My dermatology appointment was at 11:30 a.m., not 1:30 p.m. Thankfully, the clinic staff showed kindness and allowed me to still see the new dermatologist and get the treatment I sought.
Happy Valentine's Day! I can't believe Lori and I met about 25 years ago at U.C. Davis as undergraduates. We bonded very quickly over the experiences of living with lifelong health condtions. No one is going to be perfect at supporting another with challenging health conditions. But keeping a vow is not about being perfect. For us, it’s about friendship and being present. That’s the best gift that we could give each other.
24 weeks ago on Monday, August 21, 2017, I took my first injection of Tremfya (guselkumab) to treat my severe psoriasis. That day I witnessed a solar eclipse as I drove to the dermatology clinic in Sacramento. I recalled the day in grade school (February 26, 1979) when the last total solar eclipse occurred in the Northern Hemisphere. That's around the time when the first psoriasis lesions emerged on my skin. Almost forty years later, would Tremfya finally be the treatment to eclipse the nagging psoriasis all over my skin? A pattern has emerged.