Advocacy, psoriasis

Finishing Up at the American Academy of Dermatology 2017 Meeting

After taking a day to familiarize myself with the AAD meeting, I went full force for the next day and a half. I’m not sure how often patient advocates join meetings like AAD, but it definitely was a first for me. Without my guides and support from Janssen I don’t think I would have had such a positive experience.

Here are some of the elements of the meeting I experienced:

Exhibit Hall

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AAD 2017 Exhibit Hall in Orlando with over 400 booths

I took the picture above at the Aveeno booth, which shows me lost in an oat field. I don’t endorse products, but don’t mind sharing that I’ve personally used Aveeno since I was a teenager. I couldn’t pass up the photo opportunity!

The exhibit hall had over 400 booths with companies and organizations showing off their latest products, medications, and services. I naturally gravitated toward the consumer products and medications I use. But I also marveled at all the new medications available for psoriasis and atopic dermatitis. So much is coming down the pipeline, stay tuned.

Scientific Posters and Presentations

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Scientific Posters read on computers and presented in five minute sessionsfullsizerender-jpg-9

In another section of the exhibit hall doctors/researchers presented their scientific posters. I suppose these once were literal posters on a board, but now they are on slides available on computer monitors. I attended about six or seven of these sessions and found out some critical information for my future treatment options.

I liked how these sessions focused on a particular question, had clear conclusions, and did not go on for too long. The psoriasis sessions this morning garnered quite a bit of interest, as did all the psoriasis sessions I attended. Much of it flew over my head, but as a patient I still wanted to know the latest and greatest. It’s patients who can translate the information to other patients–even if we need them translated for us first.

Plenary Session

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The plenary session with Dr. Joel M. Gelfand presenting research on psoriasis and cardiovascular disease

I earmarked the the plenary session as one talk focused on the comorbidities associated with psoriasis. But first I heard the incoming AAD President’s address and another talk on melanoma. The anticipation grew as the psoriasis talk came.

Dr. Gelfand’s work includes research on the role of psoriasis in conditions found in patients. As many patients know, a myriad of conditions, such as diabetes and cardiovascular disease, are associated with psoriasis. We’ve known that those with moderate to severe psoriasis’s life spans shorten some five years. But does psoriasis cause those conditions?

The takeaway for the dermatologist is to check for psoriatic arthritis, educate and screen patients for cardiovascular risks, check for cancer, and give vaccinations like the flu shot. As patients we too should be asking for the same even if the doctor doesn’t order them for us.

Scientific Sessions

Finally, I sat in over four hours of lectures from top dermatologists on various topics related to psoriasis. The symposia had a number of doctors presenting for about 15-20 minutes each. The forum had two speakers who each took half the time.

I don’t have a picture of the scientific sessions as the AAD did not permit photography. Once I saw others take pictures, though, I felt tempted to take some. Even if I did, I wouldn’t show them publicly here. That’s if I did . . .

 

I have many more thoughts about the AAD meeting to sort out and blog about. Look for those in entries to come. In the meant time I’m looking forward to getting home tonight to celebrate my daughter’s 16th birthday.

Finally, I’m extremely grateful that Janssen gave me the opportunity to attend the meeting, and for their awesome support. They started a new psoriasis blogger group called “I Know PsO,” and invited me as a member of that group.

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Advocacy, psoriasis

American Academy of Dermatology Annual Meeting Day 1

The first day for me at the American Academy of Dermatology Annual Meeting started with ample amounts of both excitement and trepidation. I’d never attended a medical meeting for physicians, nor did I represent companies that offered services or products for them.

Yet, I felt strangely like I did belong as a lifelong psoriasis and atopic dermatitis patient. In a way, the meeting existing for me, the dermatology patient. But I didn’t know where exactly I fit in to this meeting.

The morning agenda included a discussion between the National Psoriasis Foundation (NPF) and representatives from the pharmaceutical company Janssen (see note below). I shared my experience working with blogger groups, and listened as important topics related to outreach and treatment for those living with psoriasis and their caregivers.

In the afternoon I had a chance to go to the Orlando Convention Center to see the Exhibit Hall. I recognized many brands and medications I’ve used over the years. By the end of the day, however, many samples ran out at the booths. I plan to go back tomorrow during breaks between attending scientific sessions related to psoriasis.

The evening I enjoyed attending the NPF reception where they handed out medical professional awards. I met staff from the NPF, even having a short, but in-depth conversation about my volunteer work in Northern California/Sacramento.

By the end of the day, my concern if I belonged or not at the AAD meeting did not feel so pressing. Curiosity and desire to learn more about my condition, and pass that knowledge to the psoriasis community took its place. Besides, I have a cool yellow access pass and map to guide the way!

[Note: Janssen paid for my time and travel expenses to attend the National Psoriasis Meeting meeting at AAD. All thoughts and opinions expressed here are my own and have not been influenced by Janssen.]

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Advocacy, psoriasis

Heading Out to AAD 2017 in Orlando

Today is a travel day to the American Academy of Dermatology Annual Meeting in Orlando. I originally planned to go with a press credential (which the #AAD17 amazingly approved), but alas that didn’t work out. I’m participating as a psoriasis patient advocate–an opportunity I’m grateful to have.

I plan to blog and share on social media throughout the weekend, so feel free to follow along!

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At the Sacramento Airport ready for a fully day of travel to Orlando and #AAD17

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